In 1997 Doctor Lisbeth Quesdada, of the Foundation, wrote “The Rights of a Child with a Terminal Illness,” those which were immediately accepted by the local UNICEF office. These rights were spread, shared, and are published in books across the world, serving as a base in the fight for the rights of those children and adolescents in these health conditions.

• I have the right to be perceived as a person with rights and not the property of my parents, doctors, or society.
• I have the right to cry.
• I have the right to not be alone.
• I have the right to daydream and to use my imagination.
• I have the right to play, because even though I am dying, I am still a child.
• I have the right to behave as a teenager.
• I have the right, from the day I am born, to have my pain controlled.
• I have the right to the truth regarding my condition. My questions should be answered truthfully and honestly.
• I have the right to have my needs met in a comprehensive manner.
• I have the right to die with dignity, surrounded by my loved ones and my favorite things.
• I have the right to die at home and not in a hospital if I so choose.
• I have the right to feel and express my fears.
• I have the right to receive help for myself and my parents in dealing with my death.
• I have the right to feel anger and frustration because of my illness.
• I have the right to refuse further treatment when there is no cure for my illness but only the option of a better quality of life.
• I have the right to palliative care if I so desire.
• I have the right to be sedated at the time of my death if I so desire.
• I have the right to not experience pain during treatments or diagnostic tests.
• I have the right to have my parents understand that even though I love them very much, I will be born to a new life.